Tag Archives: Chronic Illness

My triumvirate – VWD, tea and science fiction

I’ve mentioned once or twice about my obsession with tea, and you’ve probably heard about my bleeding disorder by now, but I wanted to share a bit more about my love for science fiction. And a little bit of fantasy … Continue reading

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Turning the pressure right down

So as you may have gathered from this post, international travel isn’t as straight forward for me as I might like it. I’ve previously had troubles on those long plane trips – struggling to keep my sinuses happy, feeling comfortable … Continue reading

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A joyous head injury

On Saturday morning, just before 3am, I had to get up to go to the loo. I gingerly and sleepily inched my way around my bed to get to the bedroom door in a feeble attempt to not wake my … Continue reading

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Selfishness and self care

Taking time off to take care of myself when I’ve had VWD-related issues, whether its an injury or a period, has always been a problem for me. I have always felt guilty about it. That I’m letting other people down, … Continue reading

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A small hiccup

So the day after I published this piece, I ended up spending the following 4 in bed (well on the couch as its adjacent to my DVD collection) with a stomach bug. So I didn’t quite get through winter completely … Continue reading

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Needles, tea and deep breathing

So. You have an inherited bleeding disorder, which means at some point (maybe even frequently) you’re going to end up in your local public hospital. When was the last time you ended up in hospital and it went well? Tests came … Continue reading

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A letter to patients with chronic disease…

I wasn’t actually intending on posting today, I figured I’d have something to write after tomorrow’s fun at the hospital, but I saw this post when internet browsing yesterday and it really resonated, so I thought I’d share. http://more-distractible.org/2010/07/14/a-letter-to-patients-with-chronic-disease/. Enjoy!

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Lab test monkey

I’m getting to the end of this period. I had almost 4 days of very light bleeding/spotting, then the last two days have been heavier bleeding. All the time I’ve had the same pain levels, the same abdominal bloating, levels … Continue reading

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Waiting for the bomb to drop

As I mentioned in my last post, over the last few months my menstrual bleeds have grown a mind of their own and require a new treatment plan. I’m currently testing option one, and for the last 3.5 weeks it … Continue reading

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But you don’t look sick…

Having a chronic illness like mine is often hard to explain to people. It can be a really foreign concept to try and explain what it is like to be sick all the time. I understand – as odd as … Continue reading

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