Category Archives: von Willebrands

Tweaks and turning the corner

I know I’ve been a bit quiet around here recently – that’s the trouble with living your truth. Sometimes it means battening down the hatches and focusing on yourself and your wellbeing. But I’ve been thinking about you all a … Continue reading

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Day 366

12 months ago, to the day, my life changed. On 1 February 2013, the first round of the Barrecode 60 Day Challenge for 2013 started, and my world hasn’t been the same. It was the day I stopped eating gluten, … Continue reading

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Why do we care about looking good?

Help an INTJ sister out, would ya? I’ve recently read this article on an online Australian newspaper and the first paragraph/sentence (that’s a whole other grammatical rant I won’t get into today!) gave me the shits. I’m sorry, how is … Continue reading

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Turning the pressure right down

So as you may have gathered from this post, international travel isn’t as straight forward for me as I might like it. I’ve previously had troubles on those long plane trips – struggling to keep my sinuses happy, feeling comfortable … Continue reading

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Big jet plane

About 2 months ago, I got an invitation to attend a workshop run by the World Hemophilia Foundation in Montreal, being held in early December. The workshop is about youth advocacy in the bleeding disorder community, and due to WHF’s … Continue reading

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Loving the shadows

I would’ve cut this off after the first sentence! Source I’m sure you read my love of the gorgeous Tara Bliss’ ode to our shadows , but I wanted to dig a little deeper, and talk about why shadow work … Continue reading

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A joyous head injury

On Saturday morning, just before 3am, I had to get up to go to the loo. I gingerly and sleepily inched my way around my bed to get to the bedroom door in a feeble attempt to not wake my … Continue reading

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Selfishness and self care

Taking time off to take care of myself when I’ve had VWD-related issues, whether its an injury or a period, has always been a problem for me. I have always felt guilty about it. That I’m letting other people down, … Continue reading

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Engaging mentally to disengage with the physical – a medical update

Its another period week for me, so I’ve been at home for most  of it. I’ve been building on my progress from this year in symptom management and it only seems to be getting better. The thing I’ve noticed most … Continue reading

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Intimacy, blood & sex – a unique perspective from a woman with a bleeding disorder

Today I want to share a topic with you that I think is really important and not talked about enough – what happens when you’re a girl, you have a bleeding disorder, and you want to have sex with a … Continue reading

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